Support for people in High Risk Category

Update on NHS Generated Lists Received from the Surgery regarding High-Risk Patients

We are currently awaiting further guidance from NHS England, NHS Digital and EMIS due to issues with the patient data lists - this is a national problem. We have received an update today which advises GP practices that new NHS generated lists will be issued over the next 2 - 3 weeks along with appropriate new readcodes so patients can be flagged appropriately.

If you feel you are vulnerable you can register on the government website - GP Practices will be receiving lists of patients who have registered on the Government website as vulnerable.

Use the below website to register.

https://www.gov.uk/coronavirus-extremely-vulnerable

Shielded Patients

If you have received a letter from the NHS identifying you as being on the High Risk Shielded Patients Coronavirus (COVID-19) list, you should contact the NHS for any urgent assistance you require:

Website: www.gov.uk/coronavirus-extremely-vulnerable

or

Call: 0800 028 8327

Please note - this service is only for people that have already received a letter from the NHS.

Help for the elderly or those with serious health conditions

Staffordshire County Council are offering assistance to other vulnerable residents. If you are over 70, have a serious health condition, have no alternative family or friends to offer support and require urgent assistance with personal care or obtaining food or medicine, you should contact the Staffordshire Cares team:

Email: staffordshirecares@staffordshire.gov.uk

Enter the subject as Request for Assistance

In the body of the email please enter your contact details - Address, Postcode & Phone number.

Please also enter Details of your situation and hat help is needed.

or

Call: 0300 111 8050

Monday to Friday, 9am to 5pm. Calls outside of these hours will be dealt with by an emergency team.

Help for other vulnerable people

If you require any other kind of help, Newcastle-under-Lyme Borough Council has teamed up with Realise Charity to offer assistance. This could be help with getting shopping, walking your dog or even being put in touch with local community groups or someone to talk to. To contact the Realise team:

Website: Realise Foundation - Individuals Requiring Assistance

or

Call: 01782 742800

Monday to Friday, 9am to 5pm. Calls outside of these hours will be dealt with as soon as possible.

Signposting people in high risk groups to self-management support and information

As a result of the Covid-19 pandemic, there is an important task across the Personalised Care Group to identify practical ways that we can support people staying at home. Supported self-management is of particular importance to people living with long-term conditions, who are at increased risk of severe illness from coronavirus (COVID-19).

Supported self-management approaches such as health coaching, peer support and self-management education help people to build their knowledge, skills and confidence to manage their own health and care. Evidence shows that when people are supported to increase their knowledge, skills and confidence they benefit from better health outcomes, improved experiences of care and fewer unplanned care admissions which is more important than ever at this time.

Please find links to help pages below for those people with specific health issues that are at higher risk from the COVID-19 virus: -

COPD/ Emphysema/ Bronchitis
SSM support	Description	How to access
British Lung Foundation
British Lung Foundation – Coronavirus advice for people living with COPD	We've been researching conditions for 30 Years and our Aim is to Always Improve Care. We Are the Only UK charity Looking after the nation's lungs. See the impact of our work. Campaigning for Change. 230+ Breathe Easy Groups. Founded in 1984.	https://www.blf.org.uk/support-for-you/coronavirus
Guide to COPD – for more information for patients about living with their condition	Information about what COPD is, the symptoms you might get, and how it is diagnosed and treated. Tips about controlling breathing and how to manage flare-ups, also called exacerbations	https://www.blf.org.uk/support-for-you/copd
Peer Support options for people with COPD over the phone	British Lung Foundation UK helpline	https://www.blf.org.uk/support-for-you/copd
COPD local support groups - which offer people living with COPD a chance to meet and share experiences with others.	F2F groups but may be hosting online?	https://www.blf.org.uk/support-for-you/copd
NHS apps library
NHS apps library	There are a number of apps available for free on the NHS apps library to support people to self-manage their condition.	my mhealth : myCOPD free in certain areas nhs.uk/conditions/chronic-obstructive-pulmonary-disease- copd /

Asthma
SSM support	Description	How to access
British Lung Foundation
British Lung Foundation – Coronavirus advice for people living with asthma	Researching Lung Conditions for 30 Years. The only UK charity looking after the nation's lungs.	https://www.blf.org.uk/support-for-you/coronavirus
Guide to asthma – for more information for patients about living with their condition	Asthma is a common, long-term or chronic, disease. It affects about 5 million people in the UK. This information is for adults living with asthma, their family, friends and carers. It describes the common causes of asthma, symptoms, treatment options and tips for managing your asthma. We also have information on asthma in children	https://www.blf.org.uk/support-for-you/asthma
Peer Support options for people with asthma over the phone	British Lung Foundation UK helpline	https://www.blf.org.uk/support-for-you/asthma
Asthma local support groups - which offer people living with asthma a chance to meet and share experiences with others.	F2F groups but may be hosting online?	https://www.blf.org.uk/support-for-you/asthma
Asthma UK
Asthma UK - coronavirus advice for people with asthma	Asthma UK works to stop asthma attacks and, ultimately, cure asthma by funding world leading research, and supporting people with asthma to reduce their risk	https://www.asthma.org.uk/advice/triggers/coronavirus-covid-19/
A telephone helpline	Speak to an asthma expert nurse on our helpline 0300 222 5800	https://www.asthma.org.uk/advice/resources/helpline/
Self-management information for people living with asthma, including action plan template	Resources have been created using the most trusted evidence and evaluated by healthcare professionals and people with asthma.	https://www.asthma.org.uk/advice/resources/
NHS apps library
NHS apps library	There are a number of apps available for free on the NHS apps library to support people to self-manage their condition.	https://www.nhs.uk/apps-library/searchapps/?query=asthma

Chronic Kidney Disease
SSM support	Description	How to access
Kidney Care UK
Kidney Care UK – Coronavirus advice for people living with asthma	Kidney Care UK are the UK's leading patent support charity, providing practical, financial and emotional support for kidney patients and their families	https://www.kidneycareuk.org/news-and-campaigns/coronavirus-advice/
Guide to kidney disease – for more information for patients about living with their condition	Whether you’re newly diagnosed or a long term kidney patient we have lots of information on the many aspects of kidney health - including dialysis, kidney function, and transplants	https://www.kidneycareuk.org/about-kidney-health/
Peer Support options for people with kidney disease	We can offer you support through our patient grants, holiday grants, counselling service, advocacy service, as well as our funding to improve care services	https://www.kidneycareuk.org/get-support/
Close Facebook group - which offer people living with asthma a chance to meet and share experiences with others.	Our closed Facebook group puts you in touch with others affected by kidney disease, giving you a chance to share experiences and tips on living with kidney related conditions	https://www.kidneycareuk.org/get-support/online-community/
NHS apps library
NHS apps library	None available.

Sickle Cell
SSM support	Description	How to access
Sickle Cell Society
Advice from the Sickle Cell Society on Coronavirus and Sickle Cell Disorder	The UK's only national charity to support people living with sickle cell	https://www.sicklecellsociety.org/coronavirus-and-scd/
Peer Support options for people with sickle cell over the phone	The SCS Helpline Service provides confidential information, guidance, and emotional support to individuals and families affected by sickle cell living within the UK	https://www.sicklecellsociety.org/helpline/
Information on support groups, local services and NHS Sickle Cell and Thalassaemia Centres across the UK	NHS Sickle Cell and Thalassaemia Centres, Haemoglobinopathies Coordinating Centres (HCCs) and Support Groups. Support groups play a vital part in delivering care for people living with sickle cell and their families	https://www.sicklecellsociety.org/supportgroups/

HIV
SSM support	Description	How to access
THT
Advice from the Terrance Higgins Trust on Coronavirus and HIV	The UK's only national charity to support people living with HIV	https://www.tht.org.uk/news/coronavirus-covid-19
Peer Support options for people with HIV over the phone	THT for support, advice and information.	https://www.tht.org.uk/our-services/phone-and-post/tht-direct-helpline
Information about online peer support provided by Terrence Higgins Trust	Information about service in local areas	https://www.tht.org.uk/our-services/services-your-area/support-people-living-hiv

Cancer
SSM support	Description	How to access
Cancer Research UK
Advice from Cancer Research UK on Coronavirus and Cancer	The world’s largest charity dedicated to saving lives through research. Our vision is to bring forward the day when all cancers are cured	https://www.cancerresearchuk.org/about-cancer/cancer-in-general/coronavirus-and-cancer
Peer Support options for people cancer	A nurse helpline is available free of charge	https://www.cancerresearchuk.org/about-cancer/coping/emotionally
A chat group for people experiencing cancer	Chat to others in your cancer community	https://www.cancerresearchuk.org/about-cancer/cancer-chat/home
NHS apps library
NHS apps library	None available

Diabetes
SSM support	Description	How to access
Diabetes UK
Coronavirus advice for people living with Diabetes	Updates on coronavirus and diabetes.	https://www.diabetes.org.uk/about_us/news/coronavirus
Twitter @_diabetes101	Twitter account set up by health care professionals to support people with diabetes during Covid19. Offers advice and support and online social activities for people with diabetes to join in while staying at home. Twitter bio reads: “In light of #COVID19 and pressure of NHS teams we have gathered a bunch of HCPs together to signpost PWD to accredited information & boost morale!”	Via twitter, follow @_diabetes101
Guide to Diabetes	Information you need on how you can fit diabetes around your lifestyle, from what to eat to how you can treat and manage your condition effectively.	https://www.diabetes.org.uk/guide-to-diabetes
Peer Support options for people with diabetes	Social media online communities, online support forum, real life stories, bloggers, top tips, videos by and for children with Type 1 Diabetes. Diabetes UK helpline.	https://www.diabetes.org.uk/how_we_help/community https://www.diabetes.org.uk/how_we_help/helpline
NHS apps library
NHS apps library – Diabetes	There are a number of apps available for free on the NHS apps library to support people to self-manage their condition.	https://www.nhs.uk/apps-library/category/diabetes/
MyDESMOND
MyDESMOND – for people with Type 2 diabetes, both newly diagnosed and established.	MyDESMOND has been designed to support diabetes self-management through digital means with modern lifestyles at the heart. Primarily developed with mobile-use in mind. Meets NICE requirements.	Contact your local DESMOND coordinator https://www.desmond-project.org.uk/people-with-diabetes/
Bertie
Bertie Type 1 diabetes education programme	Online self -management education for people with type 1 diabetes	https://www.bertieonline.org.uk/

Mental health
SSM support	Description	How to access
Mental Health Foundation
Looking after your mental health during the coronavirus outbreak	The Mental Health Foundation is part of the national mental health response providing support to address the mental health and psychosocial aspects of the Coronavirus outbreak, alongside colleagues at Public Health England and the Department of Health and Social Care.	https://www.mentalhealth.org.uk/publications/looking-after-your-mental-health-during-coronavirus-outbreak
Your mental health	A range of content designed to give you more information about mental health and to help you to look after your mental health. We have podcasts, videos, inspiring stories and information about getting help if you're struggling.	https://www.mentalhealth.org.uk/your-mental-health
Mind
Coronavirus and your wellbeing	You might be worried about coronavirus (COVID-19) and how it could affect your life. This may include being asked to stay at home or avoid other people. This might feel difficult or stressful. Mind offers advice on things you can try that could help your wellbeing.	https://www.mind.org.uk/information-support/coronavirus-and-your-wellbeing/
Information and support	When you’re living with a mental health problem, or supporting someone who is, having access to the right information – about a condition, treatment options, or practical issues – is vital. This page contains Tips for everyday living, Guides to support and services, helplines, Elefriends – an online community and more,	https://www.mind.org.uk/information-support/
NHS apps library
NHS apps library - Mental Health	There are a number of apps available for free on the NHS apps library to support people to self-manage their condition.	https://www.nhs.uk/apps-library/category/mental-health/

Chronic liver disease
SSM support	Description	How to access
British Liver Trust
Coronavirus information	For people with a liver condition, or you’ve had a liver transplant, this answers a number of the most common questions related to the coronavirus outbreak that you may have below.	https://britishlivertrust.org.uk/coronavirus-covid-19-health-advice-for-people-with-liver-disease-and-liver-transplant-patients/
Help and online community	If you are a patient or care for someone with a liver condition, you can contact our Helpline and/or join the British Liver Trust online forum. The British Liver Trust Helpline is staffed by fully qualified liver nurses and provides support to anyone affected by a liver condition.	https://britishlivertrust.org.uk/information-and-support/support-for-you/helpline-and-online-community/
Children’s Liver Disease Foundation
Coronavirus updates	Information and guidance for parents of children and young people with liver conditions during the coronavirus outbreak	https://childliverdisease.org/coronavirus-update-for-parents/
Help and support	Information and support for parents and young people with liver conditions	https://childliverdisease.org/parents/ https://childliverdisease.org/young-people/

Chronic neurological disease
SSM support	Description	How to access
Parkinson’s UK
Understanding coronavirus and Parkinson’s	Our priority remains supporting people living with Parkinson’s. That’s why we’ve gathered the facts and guidance to help answer some of your most common questions about coronavirus and Parkinson’s.	https://www.parkinsons.org.uk/news/understanding-coronavirus-and-parkinsons
Support Groups	Get information about Parkinson’s and support including a helpline and online community.	https://www.parkinsons.org.uk/information-and-support
Motor Neurone Disease Association
Coronavirus and MND	We are aware that the situation surrounding the spread of coronavirus may be causing people affected by motor neurone disease (MND) concern. As always we are here to offer advice, support and to signpost to the most appropriate organisation. In this case our advice is directly mirroring that being shared and updated regularly by the NHS and the Government.	https://www.mndassociation.org/mnd-and-coronavirus/
Support and information	Find out about the help and support available. You can also find details on our contact us page.	https://www.mndassociation.org/support-and-information/
Alzheimer’s Society
Coronavirus: Information for people affected by dementia	Find out more about the coronavirus and how to protect yourself and others.	https://www.alzheimers.org.uk/coronavirus-covid-19
Get support	If you or someone you know are worried about or affected by dementia, we are here for you. Get advice on a range of topics and find support near you.	https://www.alzheimers.org.uk/get-support
Dementia UK
Coronavirus information	Coronavirus (COVID-19): information for families looking after someone with dementia	https://www.dementiauk.org/get-support/coronavirus-covid-19/
Dementia and Alzheimer’s support	Admiral Nurse Dementia Helpline is for anyone with a question or concern about dementia and Alzheimer’s disease	https://www.dementiauk.org/get-support/dementia-helpline-alzheimers-helpline/
MS Society
COVID-19 coronavirus and MS treatments	This page gives the latest guidance on coronavirus COVID-19 for people affected by multiple sclerosis	https://www.mssociety.org.uk/about-ms/treatments-and-therapies/disease-modifying-therapies/covid-19-coronavirus-and-ms
MS and coronavirus care and support	We’ve been talking to lots of people in our community about multiple sclerosis and COVID-19. These are some of the questions that crop up the most.	https://www.mssociety.org.uk/care-and-support/ms-and-coronavirus-care-and-support
Epilepsy Society
Epilepsy and the Coronavirus (COVID-19) FAQs	Dr Simona Balestrini is the Muir Maxwell Research Fellow at the Epilepsy Society. Here, she has put together an FAQ factsheet for those with epilepsy about the coronavirus (COVID-19).	https://www.epilepsysociety.org.uk/epilepsy-and-coronavirus-covid-19-faqs#.Xnk40WC7JPY
Helpline and other support	Taking care of your overall wellbeing is a vital part of living with epilepsy. For some people, having information or support can help.	https://www.epilepsysociety.org.uk/helpline-and-other-support-1#.Xnk6BWC7JPY

Click here to download the above as a PDF file

General Support information

Statutory & Voluntary
Organisation/Group	Name	Contact Details	Support	Location
Cheshire East Council	People Helping People	0300 123 5034	COVID-19 response - shopping/meds/chat on phone/information	Church Lawton and Cheshire East
Staffs Cares Team - Staffs County Council - Vulnerable People	The contact centre will ask questions about whether all options have been explored.	3001118010	For emergency support/food parcels for vulnerable people - who have no-one else who can support them	Staffs wide
Government Response - Extremely Vulnerable Group (shielded people)		Phone No: 0800 0288327 Register online: https://www.gov.uk/coronavirus-extremely-vulnerable	For those patients most at risk from COVID who have had letter from government telling them to isolate	Nationwide and operating from local Hubs
NHS Volunteer Response	https://www.goodsamapp.org/NHSreferral	0808 196 3382	Check in and Chat Support : short-term telephone support to individuals who are at risk of loneliness as a consequence of self-isolation. - Community Support : collection of shopping, medication or other essential supplies for someone who is self-isolating, and delivering these supplies to their home. – Patient Transport Support : transport to take patients home who are medically fit for discharge. – NHS Transport Support : Provides transport for equipment, supplies and/or medication between NHS services and sites. Also involves assisting pharmacies with medication delivery.	Nationwide
NHS Volunteer Response	www.goodsamapp.org		Volunteers can register to support
Realise Foundation via NUL BC	https://covid19.realisefoundation.org.uk/	Tel: 01782 742800 support@realisefoundation.org.uk	Staffordshire County Council’s Urgent COVID-19 support line is 0300 111 8050 -need to go to option 2 Advice unless urgent social care need, use the local Realise number opposite	Newcastle Under Lyme
Support Staffordshire	Jill Norman	0300 7771207 https://www.supportstaffordshire.org.uk/	Co-ordinating the volunteer response	NUL/Staffs Moorlands/South Staffs

Practical support
Organisation/Group	Name	Contact Details	Support	Location
Age UK - Help at Home		01782 827923	Paid for service : shopping/cleaning/general housework	NUL/SOT
Home Services Support	Liz and Becky	01782 322224	Paid for service : Cleaning/Shopping/filling in forms/befriending	Based In SOT - cover most of NUL also
Veteran Support	TRI Services for Veterans	01782 713963 info@veteransupportcentre.org	Will aim to support veterans in whatever way they can - will pick up messages in between their usual opening hours	Newcastle Under Lyme

Carers & General Support
Organisation/Group	Name	Contact Details	Support	Location
Approach	Hilary Stefanelli	01782 21477 or email: enquiries@approachstaffordshire.co.uk	Offering telephone contact/support/signposting to carer's and people who have Dementia	North Staffs
Beth Johnson Foundation -Cancer Support		Collette Cooper (Senior Link Worker): 07507 408372 Amanda Carter (Link Worker): 07867 003313	Able to continue to provide: A listening ear to help them cope emotionally with their diagnosis and treatment Linking people to the help and advice that meet their needs e.g benefits Make informed choices to improve their wellbeing Feel supported and in control	All areas in NUL
Beth Johnson Foundation -Dementia Support		07961 752111 betty.machin@bjf.org.uk	Provides FREE support for people who are living or know someone with dementia especially those who might be struggling -by phone at present	All areas in NUL
Carer's Hub		0330 123 193	Adult and young carers support Monday -Friday 9am-5pm Wednesday 9am – 8pm Saturday 9am – 12.30pm Email: info@carershub.co.uk	Staffordshire
North Staffs Carers Association		01782 793100	https://www.carersfirst.com/ Still available for phone contact, advice and support	North Staffs
Carers UK		0808 8087777 Mon & Tues 10 - 4	https://www.carersuk.org/help-and-advice/health/looking-after-your-health/coronavirus-covid-19	Nationwide

Befriending
Organisation/Group	Name	Contact Details	Support	Location
North Staffs Linkline	Sue Mc Kenna	01782 710436	Telephone befriending - Mon/Tues/Wed/Fri - 9.00 - 12.30	North Staffs Linkline
Silverline Helpline		0800 470 8090	Open 365 days of the year/7 days a week - 24 hrs a day. They offer : Telephone befriending. Silver Connects/Group Friendship calls - need completed referrals form.	Silverline Helpline
Church Groups are listed in practical support section			Will also offer phone contact to ensure anyone vulnerable is kept in contact with	Church are Groups listed in practical support section

Virtual Social Groups
Organisation/Group	Name	Contact Details	Support	Location
Everyone Health	Suzanne Rhodes - local Manager Emily Mennell - Deputy Manager	Tel: 07849092173 https://staffordshire.everyonehealth.co.uk/articles	Daily and weekly activities delivered either on the phone or online depending on access. They will also send in the post quizzes/puzzles etc.	Everyone Health
Staffordshire Virtual Choir	Tracy Mellor	Tel: 07544 511312	Staffordshire Community VIRTUAL Choir - https://www.facebook.com/groups/3486356648105280/	Staffordshire Virtual Choir

Financial Support for All